This heading covers the work we do in developing and publishing clinical guidelines including cutaneous and rarer forms of melanoma. These rare melanoma guidelines receive accreditation by The National Institute for Health and Care Excellence (NICE).
In 2022 we are delighted to publish the updated National Clinical Guidelines for Uveal Melanoma (a type of ocular melanoma or melanoma of the eye). This update was kindly supported by Ocumel. This project was chaired by Dr Paul Nathan and is being submitted for publication in a peer review journal.
Further guidelines for another rare subset of the disease called mucosal melanoma, using NICE-accredited methods to create a
National Clinical Guidelines for Mucosal Melanoma were published. The guidelines were split into two phases; in 2017 the ano-uro-genital mucosal melanoma guidelines were produced and later published, under the chairmanship of the late Professor Martin Gore CBE. The second phase of this project, addressing sino-nasal and head & neck mucosal melanoma, was chaired by Professor Kevin Harrington reported in 2020 and has been accepted for publication. Please see the Resources Page giving access to the guideline documents supporting both professionals and patients.
Melanoma Focus also produces consensus documents and guidelines in important areas of interest such a melanoma and pregnancy, sentinel lymph node biopsy and melanoma follow-up guidelines.
The charity is also involved in public consultation concerning various aspects of melanoma medicine including the championing of patients’ interests. We routinely provide expert witnesses for NICE technology appraisals of melanoma treatments.