Update of the Ano-uro-genital Mucosal Melanoma Guideline – Invitation for Expressions of Interest
Melanoma Focus has begun preparatory work to set up a Guideline Development Group to update the Ano-uro-genital Mucosal Melanoma Guideline which covers anorectal mucosal melanoma, penile mucosal melanoma and vulvo-vaginal mucosal melanoma.
The Guidelines Group will be led by Mr Myles Smith, Surgical Oncologist, with project management and methodological support and funding by Melanoma Focus. It is really important and invaluable to have patient or carer representation on the group to give their perspective. The update will only revise the topic areas where there has been new which may change the current recommendations. Having reviewed the literature, it appears that the areas that may require updating are those of:
- Molecular testing
- Surgery
- Prognosis/Staging
- Systemic treatment -adjuvant and metastatic
We are therefore looking for the following:
- Medical oncologists with an interest in mucosal melanoma
- Pathologist with an interest in mucosal melanoma and tumour genetics
- Surgeons with interests in each of the anatomical sites (anorectal, vulvo-vaginal or penile)
- Patient or carer representatives
The Guideline Development Group consists of:
- Mr Myles Smith, (Chairman) Surgical Oncologist
- Dr Adrian Bateman, (Seconded) Consultant Histopathologist
- Dr Ruth Board, Consultant Medical Oncologist
- Mr Owen Heath, Gynaecological oncologist
- Prof Asif Muneer, Consultant Urological Surgeon and Andrologist
- Ms Karen Nugent, Colorectal Surgeon
- Dr Miranda Payne, Consultant Medical Oncologist
- Dr Guy Burkill, Consultant Radiologist
- Dr Nicos Fotiadis, Interventional Radiologist
- Mrs Nancy Turnbull, Project Manager
- Patient or carer representative(s)
We expect the process to take about 1 year with approximately 6-8 three-hour meetings which will be via video-conferencing (Zoom). No fees will be paid but travel expenses may be claimed if travel is required.
If you are a patient, or carer of someone with mucosal melanoma, and would like to be involved and part of the Guidelines Development Group, please get in touch. You don’t need a medical understanding of the topics being discussed – you will be supported throughout the process. The deadline is 31st August 2023.
Please contact Nancy Turnbull, Project Manager at mucosalmelanoma@gmail.com in the first instance or, Myles Smith at myles.smith@rmh.nhs.uk; if you have any queries.
Information for Applicants
Application form
Declaration of Interest
Guideline Development Methodology Manual